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Cardiomyopathy, Heart Failure and Transplantation Program

Linda J. Addonizio, MD

Medical Director, Children's Transplantation, Morgan Stanley Children's Hospital
Medical Director, Cardiomyopathy, Heart Failure and Transplantation Program
Professor of Pediatrics

Marc Richmond, MD

We would like to welcome you and your family to the Comprehensive Pediatric Cardiomyopathy, Heart Failure, and Transplantation Program of NewYork-Presbyterian Morgan Stanley Children's Hospital. Our program offers state-of-the-art pediatric cardiovascular care, beginning with a comprehensive evaluation that allows us to understand your child's heart problem fully. We take great pride in providing individualized management for our patients and their families. We recognize that family-oriented, comprehensive care and follow-up are critical to achieving a successful outcome. We understand that parents and caregivers are key members of the child's healthcare team, and we work closely with you and with your child's referring physicians to implement the best plan of care.

Our treatment plan takes advantage of the most advanced medical therapies, as well as cutting-edge interventions in cardiology and open-heart surgery procedures, including cardiac transplantation. Our transplant program dates back to 1984, when the world's first successful pediatric heart transplant was performed at Columbia Presbyterian Medical Center on a 4-year-old boy with complex congenital heart disease. Since then, our Pediatric Heart Transplant Program has continued to advance that proud tradition of leadership in pediatric heart transplantation. Our surgeons have performed over 300 heart transplants in children making NewYork-Presbyterian one of the largest pediatric heart transplant centers in North America and the world.

The goal of our program is to return children to their childhood. We provide our young patients and their families with the support and treatments necessary to lead as normal a life as possible. Please ask questions of anyone, at any time.

The Center for Pediatric Cardiomyopathy, Heart Failure and Transplantation gratefully acknowledges the Children's Cardiomyopathy Foundation (CCF) for its key role in the establishment of this multi-disciplinary comprehensive care program. With the support provided by CCF, the members of the center have been able to realize their goal of improving the lives of children with this rare disease.

The Children's Cardiomyopathy Foundation (CCF) is a national nonprofit organization focused on pediatric cardiomyopathy. CCF was founded in 2002 by a New Jersey parent whose two young children were affected by the disease. In recognition of the need for more research and better support, CCF was established with the purpose of stimulating and funding research on pediatric cardiomyopathy, educating and assisting physicians and patients, and increasing awareness and advocacy related to the needs of affected children and their families.

Today, CCF reaches out to more than 1,800 physicians and 350 families worldwide. As the only public interest group focused on pediatric cardiomyopathy, CCF remains committed to accelerating the search for a cure while improving diagnosis, treatment, and quality of life for children with cardiomyopathy. In terms of research, CCF provides seed funding for basic and clinical studies, supports the establishment of comprehensive care programs, and sponsors scientific think tanks in association with the National Institutes of Health-funded Pediatric Cardiomyopathy Registry. CCF also takes a leadership role in the development of a biologic specimen repository and in the planning of scientific workshops on pediatric cardiomyopathy.

To increase the visibility of the disease, CCF actively works with professional medical societies and healthcare companies as well as the National Heart, Lung, and Blood Institute, the American Heart Association, and the National Organization for Rare Disorders. For families, CCF provides easy-to-read patient materials, family matching, referrals to physicians and clinical studies, a newsletter, a list serve, and a website with comprehensive medical and care information. By providing information, resources, and support, CCF hopes that parents will be better equipped to deal with their child's diagnosis and empowered to seek the best medical care.